Back to Biomed

Just got back from Thoughtful House. Interestingly, I just happen to go on the same day the Dr. Wakefield was found guilty in England. Sounds like he's guilty but whatever. I think he means well. Biomed is just so freakin' confusing and overwhelming. It sounds convincing enough and I think we would regret not doing it. So....we are back to more pee and poop tests and then on to harsher stuff like Flagyl and Diflucan and maybe HBOT. Hope it works. Reading enough recovery stories to keep me going.

As far as ABA, it's been AMAZING. We have 2 wonderful ABA therapists who love Delaney so much. She also started school last month. We definitely think that has made a big difference. She held hands with a friend named Leo. He likes her and she's taking up with him some - so I'm told. Right now, she gets almost 3 hours 1:1 in school and 2-3 hours when she gets home. She started "adapted gymnastics" but I'm not sure we will continue. We are taking a break from OT (except what she gets at school). Hippotherapy starts soon.

Let's start out with her current behaviors that are good. She can follow 2 step commands, uses a lot of single word requests such as "lollipop", "stuck", "car", "bed", "night night", "downstairs", "chocolate" etc. However, she says occasional full random sentences. Very good at saying greeting people with hi and saying bye, bye spontaneously when they leave. Using "thank you" appropriately. She can tell you which show she wants to watch. She's pointing well but does not stretch her arm straight. Just learned to jump on the trampoline with her feet off the ground. She responds almost 100% of the time to her name. She did cuddle on the plane and also at times in our bed. However, I still don't get to hold her too much. She is just starting to look through books.

Now where she still struggles. She constantly repeats shows but sometimes it seems appropriate to what she's doing. She still rocks and bangs her head on the back of chairs and in her pack and play. Usually, she is "chanting" or repeating shows. She prefers to be alone and doesn't like to go to others houses. She still mouths things that are metal and eats books/papers. Lollipops are helping. She leans over chairs/tables before having a BM. Loves and craves deep pressure and swinging. Prefers to hangout in MeeMaw's pack and play rather than hangout with MeeMaw. We don't see a lot of tantrums, thankfully. She is still waking at night. She flaps her arms when excited and still stims on her hands/fingers.

Will send off labs this week and know a plan of action next week. Fun. Fun.